The reason I bring this up: The ideas of what we SHOULD and SHOULD NOT do as people with hemophilia have changed dramatically throughout the years. We now know that being active, and increasing your muscle strength, can actually reduce the amount of bleeds. I am living proof. I never dreamed I would be able to run on my damaged knee… but here I am… a marathon runner! Make no mistake, this has taken LOTS of careful training, starting with swimming, which most people with hemophilia know by now, is the safest form of exercise. I have worked with my team of experts (Primary Care Physician, Hematologist, Physical Therapists, Personal Trainer, and Massage Therapist) to make sure I don’t hurt myself in the process of becoming and staying healthy.
In February of 2009, for our anniversary, my husband, Jeff, and I joined a gym and started to change our lifestyle and become healthier people. After swimming for several months, I switched to cycling, and then eventually, when my leg muscles were strong enough, running. I have lost about 45 pounds so far, and I can definitely tell a difference in they way my knee reacts to things. (BTW, Jeff has lost over 100 pounds!) During my 1st few 5K races, I would wear my knee brace and factor up prior to the run. My muscle strength is such that now I can run 5K’s without a brace or factor. I will also factor up before longer cycling events, but no knee brace for cycling. It causes more harm than good on the bike, for me.